My Life as Mom to Three wonderful boys Stephen, Ryan (OHI) and Trevor (diagnosed with FTT - failure to thrive, SPD and Speech Delayed). Life is challenging but wonderful with 3 boys!
Saturday, January 2, 2010
2010 - reflecting on the past year and looking ahead
Bloggin's not been a priority lately. Juggling everyday stuff has gotten in the way of that (that and facebook).
Happy New Year. I am hoping to have a HEALTHY NEW YEAR. (So far not off to a great start on that one!) (This latest cold has been around since before Christmas and doesn't seem to want to leave me!)
2010 will sure be something! It is a big birthday for me (I'm debating on whether I want to celebrate it or just pretend it doesn't exist!)
Ryan will make his first Communion this year, so we will be having a big party!
This year as it starts out, I almost feel like a normal mom - to normal kids. For those of you who don't have special needs kids, just realize how blessed you are. I am truly blessed for the kids that I have, but being the mom of special needs kids sometimes makes me feel so defeated and without much support or empathy. While I am lucky that the issues we deal with here are workable, and we could be so much worse off, at times I do wonder about my sanity. Lately though I have started to feel more normal. The past couple of months, i have caught glimpes at "normalcy". It is an odd place to be at. Trevor no longer has Speech paths, OT's, nutritionists coming weekly - no more constant Dr. visits. He just gets speech once a week at the pre school. Ryan is no longer getting notes from school daily and we no longer have daily melt downs anymore. I have come to a point that at times I feel like I have normal everyday life and deal with every day mom issues from typcial children. On days that seem everything is pretty normal I think how great life is. Ryan is doing so well on his medication. He has a teacher that is so much more suited for a child with his issues. Trevor is making small gains in his wieght, and seems to be doing ok at pre-school. Speech, well not sure what to think of his speech - I guess its coming along. He still is off as far as his crying jags that go on for up to 40 mins after naptime and he still has sleeping issues and being overly sensative to EVERYTHING especially when he is sick, but I am having periods of time where I almost forget that he has sensory issues, or speech delays or Failure to Thrive issues. He is a very stubborn little boy. He is a very mischevious boy by nature. He is very smart and wants things his own way. He wants to be involved in EVERYTHING and wants to constantly be talking and asking questions. I do believe that out of all three of the boys, he is the one who requires the most energy to keep up with and to keep out of trouble (he is way to smart for his own good). He is a momma's boy and wants to always be with me or with Ryan. Ryan and Trevor seem to really know how to press each other's buttons. When they play together nicely, it is wonderful and makes me smile ear to ear - but most of the time Trevor just isn't a very reasonable sharer/player and then it makes Ryan get angry - then there are lots of yelling, and tears, sigh. The good side is that Stephen and Ryan play nicely together ALLOT. They seem to have teamed up together to not let Trevor in. Trevor does have a tendency to bust up any lego buildings they have put together, deletes pictures on their cameras, turns their gameboys on and runs the charge down and has been known to rip up masterpieces they have made. Trevor really is a force to be reckoned with! I'm at my witt's end a lot of the time trying to keep him from destroying the house and protecting my stuff and the boys stuff from him. 2 1/2 hours of pre school 3 days a week isn't much time away from home, so Trevor is home a lot missing his brothers so he is off to try all their things while they are away!
Trevor is my walking tornado. Ryan has become my quiet creative child - still prone to getting overly upset at small things. Stephen is my bright, shy, sensitive one with lots of friends who keeps allot of stuff to himself. I think they are rather "typical" and feel very blessed that when I think of my kids right now I think of sensitive and bright, creative and quiet and a walking tornado - no longer the first things that come to mind are "failure to thrive", speech delayed, ADD, developmentally delayed. It is nice to have come to a place where we do have some "normalcy" in this family. their issues don't seem so life threatening. Their futures don't seem so unpredictable and possibly a struggle to get through.
We went to Mike's aunt for a holiday get together and she couldn't believe how quiet and well mannered Ryan was. My mom said the same thing. It's been almost a year since Ryan was diagnosed with ADD (even though we knew that was most likely what we were dealing with) and he is doing wonderful. He is one of the best behaved kids in his Cub Scouts Den. Academically he is doing all right. He has definitely become a more serious boy and he is more thoughtful and he is not as impulsive as he had been.
Trevor is no longer getting tons of service from Early Intervention and I think that he really missed all that attention. He definitely goes out of his way to misbehave at times. He does get bored easily and is constantly wanting to clean and do whatever it is that the rest of the family is doing. I no longer fixate on everything he does or doesn't put in his mouth. His hair is growing, he looks healthy. I did get really overly anxious about the latest H1N1 scare. And for a period of time I was obsessed with the thought of him getting the flu. We did get a priority vaccine for him and the rest of the family was vaccinated too. We have been rather sickly November and December, but no flu and no strep throat which has been invading our school and our friends have been hit by them.
so for 2010 I feel very lucky where we are at when I look back at where we were just a year ago. We do have upcoming visit with the endocrinologist in March as well as Trevor's opthamologist in March too. We probably won't be going back to see the new Gastroenterologist we saw in December. He recommended a consult with an OT, and a nutritionist. While I'm sure we could benefit from their expertise, we cannot afford their astronomical fees - over 400 for a 2 hour eval from the OT and then ongoing treatment is guesstimated to be at over 300 each session. His health situation is no longer as bad as it had been and I have learned allot from our time with our nutritionist from Early intervention, and had learned from our OT from Early intervention that I feel okay about not pursuing these therapies anymore. I wonder who can afford this kind of therapy. And don't even get me started on the lousy insurance companies and how terrible it is that speech therapy is not covered, nutritionist consultation is not covered for Failure to thrive patients, SPD (Sensory processing disorder) therapy is not covered. Nor is our visits to the phychologist at the ADD clinic that we will have some office visits.
I still am struggling with my health. Still very sleep deprived, still don't know what caused my heart irregularities, still having trouble maintaining my weight, and chronic and excessive fatigue. Maybe this year I will get some answers on myself. The thought has crossed my mind that the stress I had been under last year might be a big factor in my health. Dealing with my dad's death, Ryan's ADD diagnosis and fighting with the school for him to be treated right, Trevor turning 3 and aging out of Early Intervention and still not gaining the weight he should and still speech delayed - those things can all make a person a bit anxious to say the least.
As this new year starts out, I am feeling optimistic about it. I hope to lose some weight and get healthy, get my house organized, and keep helping my kids reach their potential and deal with their issues and struggles. I do have a lot on my plate. I don't know what I was thinking when I decided I wanted to co-chair the Sweetheart dance at Trevor's pre-school, among other things I added to my already big list of things on my to do list. but that's what most of us who are mom's do. One of the things on my "to do list" - get Trevor potty trained, get Trevor to sleep in a big boy bed, and clean out my basement. Just a couple of things!
I hope 2010 is going to be a great year filled with lots of great memories for my family and for yours.
HAPPY 2010 to you! May you have great health, great joy, and great prsperity in this new year!
Tuesday, October 27, 2009
I am not having a great Fall. I don't like the weather getting cold. Yes, the leaves turning colors is pretty, but then come all the leaves that blow into my garage!
To me fall means badk to school (and that means homework).
It also means I need to get out my sweaters. I now have to do a load of delicates and hang dryables (sweaters). I can't have my kids go outside through the sprinkler for a cleaning.
I wake up and its dark (because Trevor has been getting up at 6:15, its still dark).
It means sitting bundled up trying to stay warm as I watch soccer or baseball games. (My son was playing this weekend while it rained, then snowed!!)
I also don't like fall because it means fundraising time. School fundraisers, pre school fundraiser, special needs PTA fundraisers, Cub scout fundraisers. I'm fundraised out!
Another biggie for me is that fall means Halloween is coming and that means Thanksgiving and Christmas are right around the corner. I jsut don't feel ready to be all jolly yet!
I guess I am a little grumpy. It has been so wet and cold since September. We didn't get a gentle easing into fall that is for sure. I am so tired of the rain.
Send me a joke to get me out of my "fall funk"!
Sunday, October 25, 2009
Fabulous Family pictures!



Friday, October 23, 2009
I am back!
what have I been up to, well lets see, since my last blog (July I think), Trevor turned 3, we went to Arkansas for vacation, stephen started fall baseball, ryan started fall soccer, trevor started pre school, boys started 2nd and 5th grades respectively, Ryan joined cub scouts and stephen is continuing in Cub Scouts.
I chaired Red Ribbon again this year, became the Special Needs PTA liason for NYE, became Co-Chair for Sweetheart Dance at the pre-school, am a greeter for the pre-school, am a room parent in stephen's class, a Head Room parent in Ryan's class, a classroom helper in Trevor's pre-school, volunteered for the Halloween party at the pre-school, and I'm sure I am missing things
Oh, I forgot I also agreed to the "the historian" at the pre-school. Plus, I may do some work on the directory for Young again this year.
There have also been Dr. appts, (me I was wearing a heart monitor for a month) Trevor and stephen had bone age scans done and went to the endocrinologist.
Really, I thought I was cutting back. The only thing I've cut back on is my Tupperware business. So please if you need some Tupperware, I need some orders!
So I long to blog, but lately I can't even remember what my name is of where I am supposed to be (or where my kids are supposed to be), so stringing some coherent thoughts together seems a little more than I was willing to do the past couple of months.
Today is the last day of Red Ribbon. While I am still busy with other things, I will not have this on my shoulders. It has been a full time job fo rthe past 2 weeks, and there was a lot of time put into this since school started before the past 2 weeks!
Friday, August 28, 2009
Thursday, August 20, 2009
First Day of school
Stephen at his desk in his classroom
Wednesday, June 24, 2009
Trevor sings, and Am I going to Hell??
Me, Ryan and Trevor were on our way back after dropping Stephen and friends to tennis practice. I have the music on (101.9 I believe). It's a song I recognize and has a great beat so I am kinda humming and tapping my feet and doing my "car dancing" to the music. (and no I was not paying attention to the lyrics, . . . .yet)
Then Trevor chimes in. He is singing the lyrics! And, its not quite as slow paced as Twinkle Twinkle little star either! He is singing and he is singing clearly - my little speech delayed son!
Are you wondering yet what song he is singing? Brace yourself . . . .
I hope I am not going to hell for not censoring my music and also for not turning the station once I realized what the lyrics were, but he was sining and it does have a great beat.
http://www.youtube.com/watch?v=kju9VU2B7Bk
Just in case the link above doesn't work . . . . . . . . . . . . .
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The song was by All American Rejects - if it gives you hell
this is the chorus part that Trevor sang:
When you see my faceI hope it gives you hell,
I hope it gives you hell
When you walk my wayI hope it gives you hell, I hope it gives you hell
So, am I wrong to be happy and proud about Trevor singing a pop song, Or am I going to HELL??
Thursday, June 11, 2009
Another birthday

Trevor's Eye appointment
Tuesday, June 9, 2009
Several happenings at school –
Umbrellas’ for Peace Project, - (awesome project with the artist Matt Lamb to promote world peace – I got to help the kids with their painting of the umbrellas )
4th grade state Fair – (Stephen did North Dakota – the kids are so talented and creative!)
Field Days – (didn’t see much of this one because it was changed days because of poss rain)
1st grade beach party – I didn’t get a chance to see this, but this was a very traumatic day for me and not Ryan – I’ll be blogging about that one for sure! I was not picked to be a room mom for the event, then come to find out the head room mom didn’t even come and I could have stepped in – maddening!!
Last Full day of school and School assembly (June 5th)
and last day of School June 8th (to celebrate we went with friends to Steak and Shake and got shakes and burgers – yummy!)
Several family happenings
Sean’s christening (my nephew was christened in May – such a sweet looking baby)
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Jimmy’s bday party (our nephew is now 12 and is taller than me!)
My mom’s visit – (she didn’t spend much time at our house, but we did have a nice time at the christening, at a restaurant to see the brothers and sis in laws and babies, and saw my aunt lil who’s 93 now and still driving)
And other things happenings:
Memorial day bar b que – Thanks Kathy –we invited ourselves and forced them to have a Memorial Day bar b que (well it was your turn, I Think!) – good food!
Me and Kathy - BFF's (umm, maybe I need to ask her if thats ok)
Dr. appts (another neurologist visit for Ryan– tomorrow opthamologist for Trevor’s turned in eye)
Pre school evaluation and follow up (what a disappointment to learn Trevor will only get speech) No OT, he is not developmentally delayed despite his major speech delay so no extra services besides speech once a week for an hour)
Friends birthday parties (happy birthday to Samuel, Aden, and Ben – Kelly you rock with the Survivor theme, it looked so awesome – and you are brave to have 29 kids at your house and looking like it might rain all day!)
Shop Crop and Craft for a Cure Event – I was a vendor there – anybody want to buys some Tupperware and help a great cause??
Sensory Processing Disorder Seminar – this was a great seminar! How I wish Trevor could continue in Early Intervention for a while longer so I can learn more about this
Landscaping project - Having 4 bushes/trees taken out of the front landscaping
Before with the tree by the garage door and the junipers flanking the porch
And the usual:
Nutritionist meetings (back off the growth chart in weight), OT, and Speech –Cub scout Meetings and events
PTA meetings and stuff
I’ll have to pick a couple of events to blog about! I hope to get some time to do some blogging about so much of these memorable events!
The return on Lindy cat
Lindy cat is back home, safe and sound. She was a couple of doors down, and may have been there the whole time. She was spotted there the first day she was missing, and then again the next day. We looked for her there, but she didn't appear to be there. Our neighbors called again the next day after dinner saying she was out on their patio again. I raced down there and was there in less than 3 mins. I could not see her or figure out wher she was. I thought she ran away, but she was just in a little hiding place underneath an opening by the house by their fireplace. she would not come out no matter how much i called. Thank you to my friend Kelly who got a flashlight and did spot her. I looked exactly where she was hiding and didn't see her. I had to drag her out. She's been home for a while now, but still seems to want to try to get outside.
Last week, Trevor left the door open again. I was sitting in my den and I see a big blackish brownish blob out the corner of my eye out the den window - she was out again. She was under the deck, and I scared her and she ran towards the front and I thought, not again! But she ran into the house, whew.
I hope she gets used to being an indoor cat again.
Friday, May 15, 2009
Lindy Cat is gone!
Thursday, May 14, 2009
Thank God It's Thursday
Tonight I am going to a Sensory Processing disorder seminar. I really wanted to go to a coupon class at the local community center, but I'll go and be a good mom and check out this seminar and see if I can learn something!
I hope I can get some "ammunition" so to speak for ryan's school. they don't see any Sensory Issues with Ryan. The OT who is supposed to be a professional or at least somewhat knowledgeable on the subject doesn't seem to understand what I understand to be the basics of SPD and how it affects my son, so I hope to gain more insight about it.
Grey's anatomy is on tonight - my VCR better get the job done!
Tomorrow is kind of a double header - i have a Mom n tot outing at the park. Course I am planning on doing some garage saling as I am surrounded by subdivisions doing garage sales and I love a good bargain. The second part of the double header is tomorrow night - The Kane County Cougars game (Mike and the boys will go - I can't go because I couldn't / don't have a sitter for Trevor - truth be told, I didn't even try, OOPPSS!!) Maybe next year we can ALL go, but I know Trevor wouldn't deal well with all the noise and commotion especially at his age and his bedtime is at 8:00.
Hoope you had a great Thrusday and I can almost get a way with saying TGIF!!
Wednesday, May 13, 2009
Trevor gets evaluated at the Pre-school
Trevor had his evaluation at Prairie PreSchool . . . .
I'm so glad its over . . . .
Now I wait till the Evaluation MEETING in two weeks where I will here what all is in their reports, and what all they will recommend for services.
On one hand, I was a little bit embarrassed and a bit sad that Trevor was not being the sweet fun little boy that he can be. On the other hand, it did highlight some of the bad behaviors I worry about and hopefully showed some of his weaknesses (as well as strengths).
Within being there 10 mins, Trevor failed the hearing test, then failed the vision test- WHAT??? (In my mind it just means more Dr visits, as you can see I am not too worried about his hearing or vision. Maybe he has an ear wax build up or something. his sight, well he does look cross eyed in one eye, and hopefully it is just an extra flap of skin that will be fine in time like I was told with Ryan.)
Onto the evaluation . . . The Psychologist, OT, Speech, Social Worker and School Nurse were all present for the eval. Right off the bat Trevor was getting agitated and didn't want to separate from me. He was coaxed away with toys and for a time seemed to be following their commands. He must have gotten bored or frustrated because he started melting down a bit. However, he did recover pretty quickly most times. I'm not sure if he showed any Sensory Issues, and I'm sure he did fine on Fine and Gross Motor Skills for his age. There won't be much the Nurse/School would do for his Failure to Thrive diagnosis. And speech, I know he will receive services, but am not sure if he will get inclusive service (meaning during pre-school) or if it will be outside the classroom before or after pre-school.
I was hoping he would be more compliant with the things they wanted him to do. He seemed pretty ornery, stubborn and just being tantrummy (is that a word?). I know its good for them to see him at his worst as it will show his weaknesses, but me as mom still wants others to like her kid. I still want them to say "oh what a sweet boy", and tell me what a smart boy he is and all that. He can be very social and engaging with strangers at times, but then other times and he is deathly afraid and gets very stressed about it.
I gave them the forms I filled out and reiterated my concerns and talked about him while the eval was going on. I tell them he is very smart, very affectionate with family, but terribly stubborn, very independent (most of the time), full of energy, easily frustrated, doesn't share or take turns easily. his expressive speech is lacking, talked about his getting over stimulated or other sensory issues and his problems with interactions with other kids (not sharing, not taking turns) - that those items were my concerns for him right now (as well as his lack of weight gain, but that isn't really a school issue)
All in all, I think he did ok. i guess if he had been super sweet and super funny and eagerly doing all they ask of him, and showing how much he knows instead of being stubborn and refusing to do things and melting down a bit here and there (and running to mommy) then they may not get a completely accurate picture and may recommend less therapy and intervention than is needed.
I have no idea if he will qualify for free tuition, I don't think his speech delay will be enough for that and as I stated I don't know if they will look at his Sensory piece that closely - they may chalk alot of behavioral things up to bad parenting or terrible twos for all I know. He didn't pull at his socks, or pull on his shirt tags, or insist on keeping his jacket on, pulling his hair, or covering his ears from a loud noise, so he didn't really demonstrate any Sensory Processing problems that we deal with but hopefully they will look at his OT's report and see what she has to say.
Last week the nutritionist was here and weighed and measured Trevor. He lost 1/2 a pound and did not grow in height at all, so it was a bit disappointing, but he had such a great growth spurt the month before that so I try not to get too worked up about his numbers for this month. He had been sick right before his last weight check and sometimes we will see it reflected in his lack of weight gain one or two weigh-ins later .
Now the 2 week wait begins (in the mean time I need to get him up to date on vaccines, see an eye doctor and get his hearing tested again)
Sunday, May 10, 2009

I admit when I was a daughter, but not yet a mom, I didn't understand what being a Mother was and what all Mom's go through. And, I probably should have made Mother's day even more special.
To everyone in the "sisterhood" of Motherhood, HAPPY MOTHERS DAY!
Thursday, May 7, 2009
A look back; Ryan with hives

Tuesday, April 28, 2009
Super Nanny, are you available?
Doesn't Trevor look so sweet and inncoent?
Monday, April 27, 2009
another monday . . . (and a small update on Trevor)

HAPPY MONDAY!
Books I have read
- Friday Night knitting Club
- The tale of Edgar Sawtelle
- Island of Lost Girls
- The Prizewinner of Defiance Ohio
- Nineteen Minutes
- Kite Runner
- Angry Housewives Eating Bon Bons




